Children's Hospital of San Antonio Pediatric Palliative Care Suite Study

San Antonio, Texas

1,500 SF

The Gus Owen Stephens Memorial Foundation was founded by Scott, Elizabeth, and Lucy Stephens with the mission to help children and their families cope with life-limiting illness. After losing their infant son and brother Gus to a rare genetic condition, they decided to help other families and began creating in-hospital spaces that felt like home for families to say goodbye called “Butterfly Bereavement Rooms” at area hospitals.

Their idea grew and Marmon Mok was tasked with conducting a study for a Pediatric Palliative Care Program at The Children’s Hospital of San Antonio (CHofSA), the only freestanding children’s hospital in the region. They desired to create a program that offered emotional, physical, and mental health support to children who were coping and living with chronic and terminal illness and their families, a program that can help them walk the journey of their “new normal.”